Emerging Ethics Norms in Social Media Research

by Katie Shilton

This paper argues that we should learn from practice: that researchers working with open and online datasets are converging around norms for responsible research practice that can help guide IRBs or alternative arrangements interested in regulating research ethics.

Trusting Big Data Research

by Neil Richards and Woodrow Hartzog

Although it might puzzle or even infuriate data scientists, suspicion about big data is understandable.

Towards a New Ethical and Regulatory Framework for Big Data Research

by Effy Vayena, Urs Gasser, Alexandra Wood, David R. O’Brien, and Micah Altman

Vast quantities of data about individuals are increasingly being created by services such as mobile apps and online social networks and through methods such as DNA sequencing. These data are quite rich, containing a large number of fine-grained data points related to human biology, characteristics, behaviors, and relationships over time.